Four Months in the ICU; Betty Kyalo Opens up about Daughter’s illness Early this year!

On a lengthy Facebook post Betty Kyalo wrote;

Early this year my sweet lovely daughter Ivanna was diagnosed with a rare autoimmune disease. It was marked by a sudden widespread attack of inflammation in the Brain and spinal cord called ADEM (acute disseminated encephalomyelitis)

Basically this disease damages the protective coating of the nerve fibers called myelin that act as conductors to all muscles for basic human functionality. What this means is that one day my beautiful four year old daughter stopped walking, soon stopped talking, soon stopped eating soon was so drowsy couldn’t keep her eyes open and thereafter went into a deep coma that she had to be taken to ICU and put on life support for a whole month.

For the Larger part of her diagnosis doctors couldn’t even figure out what was wrong with her. We did numerous tests looking at every organ and blood but for a long time of hospitalization in Nairobi Hospital Children’s ward we couldn’t find it. All the while she kept deteriorating every day losing one function after another. Today she could talk the next day she couldn’t make a sentence. Etc. Thanks to God and the brilliant doctors that were so kind and gracious in their work and how they diligently treated my daughter especially Dr Ismail primary ICU pediatric carer for my daughter, the overall lead Neurologist carer Dr Oyatsi and ICU nurses, Ward doctors and nurses we finally found a name to what was eating her. ADEM.

As a mother this was my lowest time, I was crushed every day seeing my daughter wasting away and Couldn’t do anything. I was depressed, cried silently sometimes hoping God would see my tears. I always feared going to the ward or ICU because I wasn’t sure what function she would lose the next day or hour. Thankfully God saw my tears. After almost 4 months of hospitalization starting from February to Mid June including one month in ICU My daughter Ivanna celebrated her birthday at home on June 22nd. She restarted school in September this year doing so well.

She has fully recovered her mobility, vocal ability and all other cognitive abilities that she lost. She’s even bolder, more confident, talks too much, more intelligent and it’s nothing short of a miracle. God has truly come through for me and my family in big way. That’s why I couldn’t fail to Glorify Him through this post. I saw my blessing and miracle.

This is not a sympathy post or on a light weight a wooooye post 😊 I am happier, stronger, more courageous and grateful. Ivanna is GREAT.

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